Hello all-
Hope 2009 is starting off well for you. Not much to report on this front except that I learned in a rather violent way over the weekend that I’ve developed a shellfish allergy. Nothing like a night of puking to turn you off from lobster forever. I don’t go back to Dr. J for two weeks so this blog will probably be rather quiet in the interim. But thanks for checking in and I’ll update you as soon as I have something to share.
B
Well as a holiday gift to me we decided to put off the BMB a little bit. Happy Holidays to you all. I wish you all healthy New Years and lots of love.
xo,
b
Bring on the large needle. Bone Marrow Biopsy number 4 is tomorrow, Dr. J’s holiday gift to me. Feeling lucky.
This is a note going out to my coworkers to encourage them to donate blood in our company blood drive. BUT you don’t need a company blood drive to donate, check the “How You Can Help” section.
To my wonderful co-workers,
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Well my hemoglobin is still hovering in the 9’s which is good news so long after my transfusion.
In the next two weeks I have an MRI, a Catscan and a bone marrow biopsy scheduled. So, fingers crossed, maybe some more news soon.
xo,
b
The Spinal Tap came back totally normal. So we continue testing…
Hi all-
Well I survived the spinal tap (Ari and I even watched Spinal Tap this weekend!). I’m sore today- and feel like there is a weird amount of pressure around the base of my spine, but the actual test was much less painful than a bone marrow biopsy. It was also kinda cool, my spinal fluid was totally clear (the way it was supposed to be) but I was still amazed that it looked like water. I also had an MRI yesterday, which was fine and I have a bunch more MRIs and Cat scans scheduled. So hopefully some more concrete information will be forthcoming shortly.
Happy turkey day to all!
xo
b
Hi all-
Sorry for slacking on the updates. Here is what is going on. Dr. J still is not 100% convinced this is MDS and my counts remain stable. So on Monday I am having a series of MRIs done and a spinal tap, lucky me. I am, of course, nervous to have someone stick a needle in my spine, although I am told it hurts less than the bone marrow biopsy. Speaking of the biopsy, I have one scheduled for the beginning of December and likely a cat scan at that time too (if the spinal tap does not show anything conclusive).
So, while I am feeling almost totally normal some uncomfortable tests are heading my way.
On the bright side, I had the most amazing time at the wedding I attended last weekend and I am counting the days until Thanksgiving when I get to see a lot of my family.
xo,
b
Stem-cell transplants for HIV-AIDS?
This is really hard for me to write but Eric Trowbridge, the boy who’s story I’d been so closely watching, passed away Friday evening. I continue to send my love to his family, who must certainly need it in this trying time.
Ironically, I who can usually wax poetical about anything and everything, am not sure what else to say.
