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Well, I haven’t updated for a while and I apologize for that. The Mayo Clinic visit is a long story- one perhaps not posted on the internet- but it has led me to start a new drug- which seems to be helping.
My RBC count this morning was 10.7 up for 9 a week ago (when I had a transfusion). This is VERY impressive. Here is to hoping the medicine continues to work and that even without a diagnosis this is the beginning of a permanent solution.
xo,
B
Hi All-
Well fed up with the unknown I thought I’d give the Mayo Clinic a try. A family friend pulled some strings and got me in quickly and so next week Momma-Ford and I are off to the wonderful land of Rochester, Minnesota. With any luck there will be news to follow.
b
Had another blood transfusion last week and then spent a lovely weekend in the country relaxing. Back to the doctor Tuesday and Wednesday so hopefully I will have a real update later this week.
B
Hi all-
Sorry I haven’t been updating but there hasn’t been much to say. I’m on the beginning of month three of my drug trial- and you usually see results between 3 and 6 months. So if this wonder drug is going to do the trick I should start feeling better very soon.
In other news my hemoglobin has been hovering between 8.5 and 9.5 which is pretty decent – so while I’m not feeling like running a marathon, and ironically my doctor keeps reminding me not to, I feel pretty good.
That’s all for now,
B
Well as a holiday gift to me we decided to put off the BMB a little bit. Happy Holidays to you all. I wish you all healthy New Years and lots of love.
xo,
b
Bring on the large needle. Bone Marrow Biopsy number 4 is tomorrow, Dr. J’s holiday gift to me. Feeling lucky.
