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But I don’t feel like talking about this week’s doctor conversations.
Soo…So I’m re-blogging this meme, which is pretty rad. It’s a cross between “25 things” and the “Random Ten”–you put your music player on shuffle and the songs that come up are the answers to the questions.
1. What do your friends say about you?
“They Love Each Other” Jerry Garcia Band
2. How would your coworkers describe you?
“Neighbors” Rolling Stones
3. How would you describe yourself?
“The Message” Bela Fleck and the Flecktones
4. What do you like in a romantic partner?
“Bad Medicine” Bon Jovi (hey I’m from Jersey) Read the rest of this entry »
Hi all-
Sorry I haven’t written in a while but to be completely honest I am a little frustrated. We seem to be no closer to knowing definitely what is wrong with me and I hate having a possible transplant hanging over my head.
I do have an appointment with a rheumatologist Monday so hopefully she can provide some insight.
Over and out-
B
Hello all-
Hope 2009 is starting off well for you. Not much to report on this front except that I learned in a rather violent way over the weekend that I’ve developed a shellfish allergy. Nothing like a night of puking to turn you off from lobster forever. I don’t go back to Dr. J for two weeks so this blog will probably be rather quiet in the interim. But thanks for checking in and I’ll update you as soon as I have something to share.
B
Hi all-
I can see from the stats that you are still visiting- still checking up on me. Muchly appreciated.
Unfortunately- or fortunetly (I’m not entirely sure), I have nothing to report. I’m still in a holding pattern- still having my counts checked reguarly and now they have started to test me for rare diseases that may be causing the underlying anemia. Nothing has shown up yet- but since there are about a trillion rare diseases it could take awhile.
Anyways, I just wanted to say thank you for looking in. Alls well for now- besides being a very tired and frustrated Becca- and I’m quite happy not to be spending the month of October in a hospital.
xo
b
Hi all-
Happy New Year to everyone. Things are still holding steady and I’m still waiting for an action plan from my doctor- could be another couple of weeks before I know what’s happening.
In the meantime I’m still going to work- seeing friends- trying to have a life. It’s hard sometimes because I get tired very easily. In fact the fatigue is my biggest complaint.
I’ve also become queen of the nap- so thanks to those of you who have patiently waited when I needed a break, or a power-nap, or need to whine at work about how tired I am.
xo
b
Well I’m not particuarly good at birthdays, they tend to make me cranky and emotional, but this one has been very special. My friends have been truly wonderful to me and it of course nice to feel so loved.
So cheers to all of you- thanks for being so supportive. And yes, I realize this is cheesy, but there really isn’t any way around it.
xo
b
CaringBridge is this great site that a lot of families use to update their friends and families (similar to what I’m doing here.) Since this all began I have been following Eric Trowbridge’s story on CaringBridge. He is a high school student with MDS and I found him when I was googling for answers. I don’t know him and yet reading his blog posts is really comforting for me- especially since he is two or three steps ahead of me in this process and his health is a bit more precarious than mine.
All my good thoughts go out towards him. If you want to check out his site here is the link.
Hi all-
I had a good nurse visit this morning. My hemoglobin is holding at 9.4 which means that last transfusion is doing its job and I probably won’t need another for at least two or three weeks. This is great news since every transfusion has an inherent risk and, therefore, the less I can get the better.
Also, something interesting I learned is that with each transfusion a deposit of iron is left in the body which overtime can cause iron overload. According to a random internet site “Normal body iron stores are 3-4 grams. Each unit of transfused red cells contains 200-250 mg of iron. Thus, a patient who receives 2 units of blood each month would accumulate approximately 5-6 g of extra iron in one year.” Of course modern medicine has a great fix for this, iron chelation. It’s a relatively simple way to get rid of the extra iron in your body. Luckily I will probably never need chelation since it takes a year or two to build up that much iron and my transplant will be occuring this fall. Anyways, probably more information than you need.
xo,
b
