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Well, I haven’t updated for a while and I apologize for that. The Mayo Clinic visit is a long story- one perhaps not posted on the internet- but it has led me to start a new drug- which seems to be helping.
My RBC count this morning was 10.7 up for 9 a week ago (when I had a transfusion). This is VERY impressive. Here is to hoping the medicine continues to work and that even without a diagnosis this is the beginning of a permanent solution.
xo,
B
