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Hi all-
Well I survived the spinal tap (Ari and I even watched Spinal Tap this weekend!). I’m sore today- and feel like there is a weird amount of pressure around the base of my spine, but the actual test was much less painful than a bone marrow biopsy. It was also kinda cool, my spinal fluid was totally clear (the way it was supposed to be) but I was still amazed that it looked like water. I also had an MRI yesterday, which was fine and I have a bunch more MRIs and Cat scans scheduled. So hopefully some more concrete information will be forthcoming shortly.
Happy turkey day to all!
xo
b
Hi all-
Sorry for slacking on the updates. Here is what is going on. Dr. J still is not 100% convinced this is MDS and my counts remain stable. So on Monday I am having a series of MRIs done and a spinal tap, lucky me. I am, of course, nervous to have someone stick a needle in my spine, although I am told it hurts less than the bone marrow biopsy. Speaking of the biopsy, I have one scheduled for the beginning of December and likely a cat scan at that time too (if the spinal tap does not show anything conclusive).
So, while I am feeling almost totally normal some uncomfortable tests are heading my way.
On the bright side, I had the most amazing time at the wedding I attended last weekend and I am counting the days until Thanksgiving when I get to see a lot of my family.
xo,
b
Stem-cell transplants for HIV-AIDS?
This is really hard for me to write but Eric Trowbridge, the boy who’s story I’d been so closely watching, passed away Friday evening. I continue to send my love to his family, who must certainly need it in this trying time.
Ironically, I who can usually wax poetical about anything and everything, am not sure what else to say.
My office is holding a holiday blood drive. I’m so touched that my boss thought to spearhead this- the only truly concrete thing anyone can do to help me.
Details to come but “yay” for working with great people at a wonderful company.
xo
b
